• Aims
• Leukemias
• Patient Organizations
• Links

Links

Table of contents

• ALL
• AML
• CLL
• CML
• CMPD
• Hematology Society
• MDS
• Other
• Patient Organization
• SCT
• Study Group
• Therapy

ALL

1. Acute Lymphocytic Leukemia
   leukemia-lymphoma.org : Leukemia & Lymphoma Society of America: ALL Information for patients
   Language: english    
2. Adult Acute Lymphoblastic Leukemia
   cancer.gov : National Cancer Institute: Information on ALL for patients
   Language: english · spanish    
3. Acute Leukemia
   merck.com : The Merck Manuals provide comprehensive, understandable medical information for patients
   Language: english    
4. CancerBackup - Acute lymphoblastic leukemia
   cancerbackup.org.uk : Cancerbackup's mission is to give cancer patients and their families the up-to-date information, practical advice and support they need to reduce the fear and uncertainty of cancer.
   Language: english    

AML  

5. Acute Myelogenous Leukemia
   leukemia-lymphoma.org : Leukemia & Lymphoma Society of America: AML Information for patients
   Language: english    
6. Adult Acute Myeloid Leukemia
   cancer.gov : National Cancer Institute: Information on AML for patients
   Language: english · spanish    
7. CancerBackup - Acute myeloid leukemia
   cancerbackup.org.uk : Cancerbackup's mission is to give cancer patients and their families the up-to-date information, practical advice and support they need to reduce the fear and uncertainty of cancer
   Language: english    

CLL  

8. Chronic Lymphocytic Leukemia
   leukemia-lymphoma.org : Leukemia & Lymphoma Society of America: CLL Information for patients
   Language: english    
9. Chronic Lymphocytic Leukemia
   cancer.gov : National Cancer Institute: Information on CLL for patients
   Language: english · spanish    
10. Chronic Lymphatic Leukemia
    merck.com : The Merck Manuals provide comprehensive, understandable medical information for patients
    Language: english    
11. CancerBackup - Chronic lymphocytic leukemia
    cancerbackup.org.uk : Cancerbackup's mission is to give cancer patients and their families the up-to-date information, practical advice and support they need to reduce the fear and uncertainty of cancer
    Language: english    

CML  

12. Chronic Myeloid Leukemia Support Group
    cmlsupport.org.uk : CMLSupport.org.uk is an online patient support group which was set up in 1999 after a fortuitous meeting between two patients who were both diagnosed with PH+ Chronic Myeloid Leukaemia.
    Language: english    
13. CancerBackup - Chronic myeloid leukemia
    cancerbackup.org.uk : Cancerbackup's mission is to give cancer patients and their families the up-to-date information, practical advice and support they need to reduce the fear and uncertainty of cancer
    Language: english    
14. Chronic Myelogenous Leukemia
    leukemia-lymphoma.org : Leukemia & Lymphoma Society of America: CML Information for patients
    Language: english    
15. Chronic Myelogenous Leukemia
    cancer.gov : National Cancer Institute: Information on CML for patients
    Language: english · spanish    
16. The UnOfficial Gleevec (STI571) Site
    newcmldrug.com : Purpose of this site is to provide information on Gleevec (STI571), manufactured by Novartis. The site is unofficial and not affiliated with Novartis or any Medical Institution or Doctor.
    Language: english    

CMPD  

17. Polycythemia Vera
    leukemia-lymphoma.org : The Leukemia & Lymphoma Society is the world's largest voluntary health organization dedicated to funding blood cancer research, education and patient services. The Society's mission: Cure leukemia, lymphoma, Hodgkin's disease and myeloma, and improve the quality of life of patients and their families
    Language: english    
18. Essential Or Primary Thrombocythemia
    leukemia-lymphoma.org : The Leukemia & Lymphoma Society is the world's largest voluntary health organization dedicated to funding blood cancer research, education and patient services. The Society's mission: Cure leukemia, lymphoma, Hodgkin's disease and myeloma, and improve the quality of life of patients and their families
    Language: english    
19. Idiopathic Myelofibrosis
    leukemia-lymphoma.org : The Leukemia & Lymphoma Society is the world's largest voluntary health organization dedicated to funding blood cancer research, education and patient services. The Society's mission: Cure leukemia, lymphoma, Hodgkin's disease and myeloma, and improve the quality of life of patients and their families
    Language: english    
20. Primary Polycythemia; Vaquez' Disease
    merck.com : The Merck Manuals provide comprehensive, understandable medical information for patients
    Language: english    
21. Myelofibrosis
    merck.com : The Merck Manuals provide comprehensive, understandable medical information for patients
    Language: english    
22. Essential Thrombocythemia
    merck.com : The Merck Manuals provide comprehensive, understandable medical information for patients
    Language: english    

Hematology Society  

23. American Association for Cancer Research (AACR)
    aacr.org : AACR is the authoritative source of information about advances in the causes, diagnosis, treatment and prevention of cancer
    Language: english    
24. American Society of Clinical Oncology (ASCO)
    asco.org : ASCO is a non-profit organization, founded in 1964, with overarching goals of improving cancer care and prevention and ensuring that all patients with cancer receive care of the highest quality.
    Language: english    
25. Memorial Sloan-Kettering Cancer Center
    mskcc.org : As one of the world's premier cancer centers, Memorial Sloan-Kettering Cancer Center is committed to exceptional patient care, research, and educational programs
    Language: english    
26. Cancerworld.org - The online world of oncology
    cancerworld.org : Cancerworld.org supports websites representing associations whose aims are the advancement of the science, and the understanding and care of patients in oncology. The portal brings together doctors, nurses other health professionals and patients in the fight against cancer in both the developed and emerging worlds and provides the end Internet user with a comprehensive range of information and perspectives.
    Language: english    
27. Österreichische Gesellschaft für Hämatologie und Onkologie
    billrothhaus.at : Die Österreichische Gesellschaft für Hämatologie und Onkologie hat sich zum Ziel gesetzt, die Betreuung von Patienten mit hämatologischen bzw. onkologischen Erkrankungen österreichweit an den jeweils bestmöglichen Standard heranzuführen. Diese Zielsetzung betrifft Prävention, Frühdiagnose, Diagnose, Behandlung, sowie Nachsorge und wird auf verschiedenen Ebenen verwirklicht.
    Language: german    
28. International Society for Experimental Hematology (ISEH)
    iseh.org : ISEH was founded in 1972 and continues to be the forum for basic as well as translational studies in hematopoietic stem cell biology, cytokines, cutting edge experimental hematology and clinical hematopoietic stem cell transplantation, underpinning innovative therapies for lymphoma, myeloma, lymphoma and genetic disorders
    Language: english    
29. American Cancer Society
    cancer.org : The American Cancer Society (ACS) is a nationwide, community-based voluntary health organization
    Language: english · spanish    
30. American Society for Histocompatibility and Immunogenetics
    ashi-hla.org : The American Society for Histocompatibility and Immunogenetics (ASHI) is a not-for-profit association of clinical and research professionals including immunologists, geneticists, molecular biologists, transplant physicians and surgeons, pathologists and technologists
    Language: english    
31. Centers for Disease Control and Prevention
    cdc.gov/ : The Centers for Disease Control and Prevention (CDC) is one of the 13 major operating components of the Department of Health and Human Services (HHS), which is the principal agency in the United States government for protecting the health and safety of all Americans and for providing essential human services, especially for those people who are least able to help themselves.
    Language: english    
32. Eastern Cooperative Oncology Group (ECOG)
    ecog.dfci.harvard.edu : The Eastern Cooperative Oncology Group (ECOG) is one of the largest clinical cancer research organizations in the United States, and conducts clinical trials in all types of adult cancers.
    Language: english    
33. European Society for Medical Oncology (ESMO)
    esmo.org : The European Society for Medical Oncology (ESMO) is the leading European Society that provides education and guidelines for medical oncologists to ensure optimal care for cancer patients.
    Language: english    
34. International Union Against Cancer
    uicc.org : The International Union Against Cancer (UICC) is devoted exclusively to all aspects of the worldwide fight against cancer
    Language: english    
35. Leukemia & Lymphoma Society of America
    leukemia-lymphoma.org : The Leukemia & Lymphoma Society is the world's largest voluntary health organization dedicated to funding blood cancer research, education, and patient services. The Society's mission: Cure leukemia, lymphoma, Hodgkin's disease and myeloma, and improve the quality of life of patients and their families.
    Language: english    
36. MD Anderson Cancer Center
    mdanderson.org : University of Texas - MD Anderson Cancer Center
    Language: english    
37. World Oncology Network - Hematology Center
    worldoncology.net : WON is a nonprofit organization with more than 2000 members from over 80 countries. Includes not only those professionals working in major cities, centers and universities but also those located in most distant areas with limited resources.
    Language: english    
38. HRVATSKA UDRUGA LEUKEMIJA I LIMFOMI
    hull.hr/ : Hungarian Hematology Organization
    Language: croatian    
39. LOSEV - Ankara Losemili Cocuklar Vakfı
    losev.org.tr/ : Merkezi Ankara'da bulunan Lösemili Cocuklar Vakfi'nin web sitesi.
    Language: english · french · turkish    

MDS  

40. Aplastic Anemia & MDS International Foundation
    aamds.org : The Aplastic Anemia & MDS International Foundation is the oldest and largest patient advocate and support organization for bone marrow diseases, providing life-saving hope, knowledge, and support to hundreds of thousands of patients and their families around the world.
    Language: english    
41. The Myelodysplastic Syndromes Foundation
    mds-foundation.org : The MDS Foundation is a multi disciplinary, international organization devoted to the prevention, treatment, and study of the myelodysplastic syndromes
    Language: english    
42. MDS Foundation
    mds-foundation.org : The MDS Foundation is a multi disciplinary, international organization devoted to the prevention, treatment, and study of the myelodysplastic syndromes. The organization is based upon the premise that international cooperation will accelerate the process leading to the control and cure of these diseases
    Language: english    
43. Myelodysplastic Syndrome
    merck.com : The Merck Manuals provide comprehensive, understandable medical information for patients
    Language: english    

Other  

44. Bloodline - Online resource for hematology education and news
    bloodline.net/ : BloodLine is a reference site containing links to important hematology sites and resources on the Internet
    Language: english    
45. Klinische Forschung Deutschland
    kfd-online.de : Das Portal wendet sich vor allem an Patienten, die an einer klinischen Studie teilnehmen wollen. Diese können sich hier registrieren lassen. Darüber hinaus hält es Informationen für Ärzte und Prüfzentren sowie Sponsoren bereit. Weiterhin können sich an Studien beteiligte austauschen. Ziel ist es, Probanden und Patienten in laufende Studien einzubinden und den entsprechenden Prüfärzten zuzuleiten.
    Language: german    
46. Leukaemia Foundation
    leukaemia.org.au : Information about leukemia and patient online support
    Language: english    
47. Leukaemia CARE
    leukaemiacare.org.uk : Leukaemia CARE exists to provide vital care and support to all those whose lives are affected by leukaemia, lymphoma and the allied blood disorders. Our work extends to the welfare of families and carers, as well as that of patients themselves.
    Language: english    
48. Follow-Up Guidelines / Late effects
    survivorshipguidelines.org/ : Long-Term Follow-Up Guidelines for Survivors of Childhood, Adolescent, and Young Adult Cancers
    Language: english    
49. Lymphoma Foundation Canada
    lymphoma.ca : Our organization is dedicated to providing support to individuals with lymphoma, including Hodgkin's and non-Hodgkin's lymphoma. We also care about their friends and family, and aim to provide information to anyone who may be impacted by this cancer.
    Language: english · french    
50. Fact-Sheets
    leukemia-lymphoma.org : The Leukemia & Lymphoma Society provides a series of Fact Sheets offering the latest information on blood cancers
    Language: english    
51. World Health Organization (WHO)
    who.int : The World Health Organization is the United Nations specialized agency for health
    Language: arabic · chinese · english · french · russian · spanish    
52. Lymphoma Support & Research Association Inc.
    lymphoma.org.au : This site aims to support those touched by lymphoma, raise awareness of the disease and help fund research for a cure
    Language: english    
53. Association pour la Recherche sur le Cancer
    arc.asso.fr : L'ARC est l'une des associations qui consacrent la part la plus importante de ses ressources à la recherche sur le cancer, qu'elle soit fondamentale, clinique ou en prévention.
    Language: french    
54. L'Associazione Italiana per la Ricerca sul Cancro
    airc.it : L'Associazione Italiana per la Ricerca sul Cancro, ente privato senza fini di lucro, è stata fondata nel 1965 grazie all'iniziativa di alcuni ricercatori dell'Istituto dei Tumori di Milano, fra cui il Professor Umberto Veronesi e il Professor Giuseppe della Porta, avvalendosi del prezioso sostegno di noti imprenditori milanesi
    Language: italian    

Patient Organization  

55. Patient organization - UK
    CML Support UK :
    Language: english    
56. Patient organization - BULGARIA
    Association of People Suffering from Chronic Myeloid Leukemia : A patient organisation in Bulgaria for CML patients.
57. Patient organization - AUSTRIA
    Myelom Kontakt Österreich mit Lymphom Kontaktgruppe : A patient organisation to support patients and their relevants, located in austria.
    Language: german    
58. Patient organization - SPAIN
    Asociacion Espanola de Afectados por Linfomas, AEAL : AEAL es una asociación sin ánimo de lucro que se financia con las aportaciones de los socios y donaciones privadas. Ésta página web está financiada íntegramente con los fondos de la asociación.
59. Patient organization - LATVIA
    Leikemijas slimnieku atbalsta biedriba : Association of Support for Leukemia Patients. Language: Latvian.
60. Patient organization - HUNGARY
    CML es GIST beteg egyesület : CML and GIST patient’s Association in Hungary.
    Language: hungarian    
61. Patient organization - NETHERLAND
    Stichting Contactgroep Leukemie : De Contactgroep Leukemie richt zich op alle volwassenen in Nederland die te maken hebben met een vorm van leukemie, hetzij omdat ze zelf patiënt zijn of zijn geweest, of omdat zij iemand in hun omgeving kennen die met leukemie te maken heeft.
62. Patient organization - SWITZERLAND
    Stiftung zur Förderung der Knochenmarktransplantation (SFK) : Die SFK wurde 1994 gegründet durch eine Privatinitiative, aus eigener Betroffenheit. Sie ist von sämtlichen Steuern befreit und steht ehrenamtlich, praktisch rund um die Uhr, mit ihren Hilfeleistungen an Leukämie erkrankten jungen Menschen, Kindern und ihren Familien mit Rat und Tat zur Seite.
    Language: german    
63. Patient organization - ESTONIA
    Estonian Leukaemia Patients Society : Eesti Leukeemiahaigete Liit. Language: estonian.
64. Fertile Hope
    fertilehope.org/ : Fertile Hope is a national nonprofit organization dedicated to providing reproductive information, support and hope to cancer patients whose medical treatments present the risk of infertility
    Language: english    
65. Patient organization - CROATIA
    Croation Leukemia and Lymphoma Society : Hrvatska Udruga Leukemija I Limformi
    Language: croatian    
66. Patient organization - FRANCE
    Association Laurette Fugain : Information from and for leukemian patients in France.
    Language: french    
67. Patient organization - FRANCE
    France Federation Leucemie Espoir : La Fédération Leucémie Espoir (FLE) est une association de Vie et d’Espoir, tournée vers l’avenir pour apporter aide morale, matérielle et soutient aux malades et à leur famille.
68. Patient organization - UK
    Leukaemia CARE : Leukaemia CARE exists to provide vital care and support to all those whose lives are affected by leukaemia, lymphoma and the allied blood disorders. Our work extends to the welfare of families and carers, as well as that of patients themselves. Quite simply... 'supporting a quality of life'.
    Language: english    
69. Patient organization - GERMANY
    Leukaemie online : Leukämie-Online e.V. engagiert sich als unabhängige deutschsprachige Wissens- und Kommunikationsdrehscheibe zum Thema Leukämie - von Patienten für Patienten und Angehörige. Das von Leukämiepatienten betriebene Angebot fördert aktive, informierte und selbstbestimmte Patienten durch umfangreiche Informationen über die neuen Möglichkeiten und Chancen in der Behandlung von Leukämie.
    Language: german    
70. Patient organization - LATVIA
    Limfomas pacientu atbalsta organizacija : Limfomas pacientu atbalsta biedrību šobrīd droši var saukt par jaunu cilvēku- domubiedru grupu, tāpēc, iespējams, sanāksmes norit brīvā un nepiespiestā gaisotnē, bet darāmie darbi veicas viegli un ātri. Katra tikšanās reize ir vērtīga ikvienam klātesošajam – vai tā būtu tikšanās ar speciālistiem un atbildes uz jautājumiem, kam neatliek laika ikdienā, vai domu un pieredzes apmaiņa savā starpā - „Kā Tev bija? ”, „Ko man darīt šajā situācijā? ”, „Tev taču pienākas atvieglojumi!”, vai arī vienkārši pamatīga C vitamīna deva smieklu veidā...
71. Patient organization - NETHERLAND
    LymfklierkrankerVereniging Nederland : LymfklierkankerVereniging Nederland geeft hulp en steun aan (ex)patiënten met lymfklierkanker en hun naasten.
72. Patient organization - IRELAND
    Lymphoma Support Ireland : Lymphoma Support Ireland (LSI) was formed in 1987, to provide information, advice and emotional support, for people with Hodgkin Lymphoma (Hodgkin Disease) (HD) and Non Hodgkin Lymphoma (NHL) and their carers, located in Ireland.
    Language: english    
73. Patient organization - POLEN
    Ogolnokrajowe Stowarzyszenie Pomocy Chorym na Przewlekla : Nationwide CML Association
74. Patient organization - FRANCE
    France Lymphome Espoir : Patient organisation located in France.
    Language: french    
75. Patient organization - CZECH
    Lymfom Help : Patient organization in the Czech Republic. Language: czech.
76. Patient organization - PORTUGAL
    Associacao Portuguesa contra a Leucemia : Patient organization located in Portugal.
77. Patient organization - PORTUGAL
    Portuguese Leukemia and Lymphoma Association : Patient organization located in Portugal.
78. Patient organization - CZECH
    Diagnoza CML : Patient organizsation for CML patients, located in the Czech Republic.
79. Deutsche Leukämie- und Lymphomhilfe e.V.
    leukaemie-hilfe.de/ : Selbsthilfeorganisation für Patienten mit Leukämie- oder Lymphomerkrankung
    Language: german    
80. Patient organization - ITALY
    Associazione Italiana contro le Leucemie-Linfomi e Mieloma : Sono a vostra disposizione anche i reportage degli ultimi convegni medici internazionali. Gli argomenti trattati, nonostante la loro complessità, sono esposti con un linguaggio semplice e chiaro.
    Language: english · italian · spanish    
81. Patient organization - SLOVENIA
    Drustvo bolnikov z limfomom : Spletna stran www.limfom.si, ki ste jo ravnokar odprli, je rezultat nekaj mesečnega dela, ki pa še zdaleč ni končano. Čeprav ogrodje spletne strani, ki so ga naredili v spletni agenciji Sonce.net, že stoji, pa nas čaka še veliko dela s pripravljanjem vsebin. Zato lahko rečem, da bo vsak ted...
82. Patient organization - UK
    Lymphoma Association : The Lymphoma Association provides emotional support and information on a range of issues to anyone with lymphatic cancer and to their families, carers and friends
    Language: english    
83. Patient organization - UKRAINE
    Osana : Website not yet available
84. Patient organization - NETHERLAND
    Stichting Zeldzame Bloedziekten : Wij zijn een stichting die, onze naam geeft dit al aan, patiënten met zeldzame bloedziekten op allerlei gebieden probeert van dienst te zijn. Daarom hebben verschillende bloedziektengroepen hun activiteiten gebundeld in een domeinnaam www.bloedziekten.nl waarbij ze proberen gebruik te maken van elkaars synergie.
85. Patient organization - SWITZERLAND
    Schweizerische Patientenorganisation für : ho/noho: Die Selbsthilfegruppe... ... mit Sitz in Basel, begleitet Erwachsene Personen mit malignen Lymphomen und deren Angehörige. ... ist Mitglied der Lymphoma Coalition, einem internationalen Netzwerk von Lymphompatientengruppen. ... ist Mitglied der Deutschen Leukämie- und Lymphomhilfe e.V., Bonn
    Language: german    
86. Cancer Consultants
    patient.cancerconsultants.com : CancerConsultants.com Inc. is a developer of cancer program web sites, cancer related internet-based educational resources and marketing consulting services for cancer programs
    Language: english    
87. Cancer Pain
    cancer-pain.org : Provides cancer patients with information about causes, development and relief from cancer pain.
    Language: english    

SCT  

88. Bone Marrow Donors Worldwide
    bmdw.org : Bone Marrow Donors Worldwide (BMDW) is the continuing effort to collect the HLA phenotypes of volunteer stem cell donors and cord blood units, and is responsible for the co-ordination of their worldwide distribution. Participants are 58 stem cell donor registries from 43 countries, and 38 cord blood banks from 21 countries
    Language: english    
89. Bone Marrow Transplantation and Peripheral Blood Stem Cell Transplantation: Questions and Answers
    cancer.gov : National Cancer Institute: Information on Bone Marrow Transplantation
    Language: english · spanish    
90. National Marrow Donor Program
    marrow.org : The National Marrow Donor Program (NMDP) helps people who need a life-saving marrow or blood cell transplant
    Language: english    
91. Zentrales Knochenmarkspender Register Deutschland
    zkrd.de : The primary objective of the ZKRD is the efficient procurement of blood stem cell donations from bone marrow, peripheral blood or umbilical cord blood for patients in Germany and throughout the world
    Language: english · german    

Study Group  

92. Southwest Oncology Group
    swog.org : Southwest Oncology Group is one of the largest cancer clinical trials cooperative groups in the United States, funded by research grants from the National Cancer Institute
    Language: english    
93. Cancer and Leukemia Group B (CALGB)
    calgb.org : The Cancer and Leukemia Group B (CALGB) is a national clinical research group sponsored by the National Cancer Institute, with its Central Office headquartered at the University of Chicago and its Statistical Center located at Duke University.
    Language: english    
94. Stichting Haemato-Oncologie voor Volwassenen Nederland
    hovon.nl : Dutch haemato-oncology association. The main goal of the group is promoting the most effective treatment of adults with hemato-oncological diseases
    Language: english · dutch    

Therapy  

95. Avascular necrosis - The Mayo Clinic
    mayoclinic.com :
    Language: english    
96. Avascular necrosis - The Merck Manual
    merck.com :
    Language: english    
97. Osteonecrosis - National Institute of Arthritis and Musculoskeletal and Skin Diseases
    niams.nih.gov : The mission of the National Institute of Arthritis and Musculoskeletal and Skin Diseases is to support research into the causes, treatment, and prevention of arthritis and musculoskeletal and skin diseases, the training of basic and clinical scientists to carry out this research, and the dissemination of information on research progress in these diseases
    Language: english