Overview on patient organizations across Europe

Contact person: Elke Weichenberger
Adress: Josef Mayburgerkai 54, A-5020 Salzburg
Phone: 0043 (0) 664/ 4250161
E-mail: elke.weichenberger@myelom.at

A patient organization in Bulgaria for CML patients.

Phone: 0899 123 999, 0888 202 145
E-mail: hml@abv.bg

President: Krunoslav Cigoj
Secretary: Jadranka Santini
Address (Zagreb): Trg hrvatskih velikana 2
HR-10000, Zagreb Croatia
Phone: +385 1 48 73 561

Address (Split): Doverska 35 HR-21000, Split Croatia
Phone: +385 21 46 20 23
Medical director: Boris Labar, MD, PhD, Associate Professor
Address: Clinical Hospital Center Zagreb
Dept. of Medicine, Div. of Hematology
Kispaticeva 12
HR-10000, Zagreb Croatia
Phone: +385 1 23 88 644
Fax: +385 1 24 21 892
e-mail: boris.labar@inet.hr
Website: http://www.hull.hr

Patient organization in Czech Republic. Language: czech

Adress: LYMFOM HELP, o.s., Arménská 1374/14, Praha 10 – Vršovice

Patient organizsation for CML patients, located in the Czech Republic

Adress: Diagnóza CML, o.s., Na Výtoni 4, 120 00 Praha 2
Email: janapel@centrum.cz
Phone: 728 308 360

Eesti Leukeemiahaigete Liit. Language: estonian

Adress: Võiste, Tahkuranna vald, 86501 Pärnu maakond
E-mail: info@leukeemia.ee

Visiting address:
Churchilllaan 11 - 2nd floor
3527 GV Utrecht, The Netherlands
Postal address:
P.O.Box 8152
3503 RD Utrecht, The Netherlands
Tel: +31 30 296 74 66
Fax: +31 30 296 74 39
E-mail: info@ecpc-online.org
Website: http://www.ecpc-online.org

Executive Director:
Patricia Huijbregts
E-mail: patricia.huijbregts@ecpc-online.org
Administrator:
Daniëlle Brouwer
E-mail: danielle.brouwer@ecpc-online.org

Head of EU Policy:
Hildrun Sundseth
Dreve de Nivelles, 99
1150 Brussels, Belgium
Tel: +32 2 772 6165
Fax: +32 2 772 6135
E-mail: hildrun.sundseth@ecpc-online.org

Information from and for leukemian patients in France.

E-mail: secretariat@laurettefugain.org

La Fédération Leucémie Espoir (FLE) est une association de Vie et d’Espoir, tournée vers l’avenir pour apporter aide morale, matérielle et soutient aux malades et à leur famille.

Patient organisation located in France

Contact person / Patient Advocat:
Dr. med. Ulrike Holtkamp

Deutsche Leukämie- und Lymphom-Hilfe e.V. (DLH)
Thomas-Mann-Str. 40 -
D-53111 Bonn
Tel.: +49 228 33 88 9 200
Fax: +49 228 33 88 9 222
Email: info@leukaemie-hilfe.de
Home: http://www.leukaemie-hilfe.de

Leukämie-Online e.V. engagiert sich als unabhängige deutschsprachige Wissens- und Kommunikationsdrehscheibe zum Thema Leukämie - von Patienten für Patienten und Angehörige. Das von Leukämiepatienten betriebene Angebot fördert aktive, informierte und selbstbestimmte Patienten durch umfangreiche Informationen über die neuen Möglichkeiten und Chancen in der Behandlung von Leukämie.

CML and GIST patient’s Association in Hungary.

E-mail: cmlgist@cmlgist.hu

Lymphoma Support Ireland (LSI) was formed in 1987, to provide information, advice and emotional support, for people with Hodgkin Lymphoma (Hodgkin Disease) (HD) and Non Hodgkin Lymphoma (NHL) and their carers, located in Ireland.

E-mail: info@lymphoma.ie

Sono a vostra disposizione anche i reportage degli ultimi convegni medici internazionali. Gli argomenti trattati, nonostante la loro complessità, sono esposti con un linguaggio semplice e chiaro.

Adress: Via Casilina 5, 00182 Rome
Phone: 0039 06 7038601
E-mail: ail@ail.it

Limfomas pacientu atbalsta biedrību šobrīd droši var saukt par jaunu cilvēku- domubiedru grupu, tāpēc, iespējams, sanāksmes norit brīvā un nepiespiestā gaisotnē, bet darāmie darbi veicas viegli un ātri. Katra tikšanās reize ir vērtīga ikvienam klātesošajam – vai tā būtu tikšanās ar speciālistiem un atbildes uz jautājumiem, kam neatliek laika ikdienā, vai domu un pieredzes apmaiņa savā starpā - „Kā Tev bija? ”, „Ko man darīt šajā situācijā? ”, „Tev taču pienākas atvieglojumi!”, vai arī vienkārši pamatīga C vitamīna deva smieklu veidā.

Address:
The Lymphoma Patient Support Association, Linezera street 6, Riga, LV-1006
E-mail: info@limfoma.lv
Phone: 00371 7 103 202

Association of Support for Leukemia Patients. Language: Latvian

Adress: Leikēmijas slimnieku atbalsta biedrība, a/k 250, Rīga, LV- 1050
E-mail: leikemijasbiedriba@one.lv, leikemijasbiedriba@inbox.lv

Wij zijn een stichting die, onze naam geeft dit al aan, patiënten met zeldzame bloedziekten op allerlei gebieden probeert van dienst te zijn. Daarom hebben verschillende bloedziektengroepen hun activiteiten gebundeld in een domeinnaam www.bloedziekten.nl waarbij ze proberen gebruik te maken van elkaars synergie.

Adress: p/a Het Rijpaard 32, 8252 EV Dronten
E-mail: info@leukemie.nfkpv.nl

Patient organization located in Portugal.

Adress: Associação Portuguesa contra a Leucemia, R. Prof. Carlos Alberto da Mota Pinto, 17 - 9º, Edificio Amoreiras Square, 1070-313 Lisboa
Phone: 21 342 2204/05
Fax: 21 342 2206
E-mail: apc.leucemia@mail.telepac.pt

Patient organization located in Portugal

Adress: Estrada Interior da Circunvalação, 6657, salas 90 e 91, 4200-177 Porto, Portugal
E-mail: geral@apll.org

Spletna stran www.limfom.si, ki ste jo ravnokar odprli, je rezultat nekaj mesečnega dela, ki pa še zdaleč ni končano. Čeprav ogrodje spletne strani, ki so ga naredili v spletni agenciji Sonce.net, že stoji, pa nas čaka še veliko dela s pripravljanjem vsebin. Zato lahko rečem, da bo vsak ted.

E-mail: info@limfom.si

AEAL es una asociación sin ánimo de lucro que se financia con las aportaciones de los socios y donaciones privadas. Ésta página web está financiada íntegramente con los fondos de la asociación.

Die SFK wurde 1994 gegründet durch eine Privatinitiative, aus eigener Betroffenheit. Sie ist von sämtlichen Steuern befreit und steht ehrenamtlich, praktisch rund um die Uhr, mit ihren Hilfeleistungen an Leukämie erkrankten jungen Menschen, Kindern und ihren Familien mit Rat und Tat zur Seite.

Adress: Vor der Rainholzstr. 3, 8123 Ebmatingen, Switzerland
Phone: 044 982 1212
E-mail: info@knochenmark.ch

Die Selbsthilfegruppe mit Sitz in Basel, begleitet Erwachsene Personen mit malignen Lymphomen und deren Angehörige, ist Mitglied der Lymphoma Coalition, einem internationalen Netzwerk von Lymphompatientengruppen, sowie der Deutschen Leukämie- und Lymphomhilfe e.V., Bonn

Adress: ho/noho - Schweizerische Patientenorganisation für Lymphombetroffene und Angehörige, Rosmarie Pfau, Weidenweg 39, CH-4147 Aesch BL
Phone: 0041 61 421 09 27
E-Mail: info@lymphome.ch

This site is published and maintained by CML patients and carers, for the use of CML patients, their families and carers. Our aim is to provide support and updated information regarding the best available therapy for CML patients in the UK and Europe, although we warmly welcome membership from all CML patients worldwide.

Adress: PO Box 56213, London N4 4WF, United Kingdom
E-mail: info@cmlsupport.org.uk

Leukaemia CARE exists to provide vital care and support to all those whose lives are affected by leukaemia, lymphoma and the allied blood disorders. Our work extends to the welfare of families and carers, as well as that of patients themselves. Quite simply... 'supporting a quality of life'.

Adress: One Birch Court, Blackpole East, Worcester. WR3 8SG UK
Phone: 01905 755977
E-mail: enquiries@leukaemiaCARE.org.uk

The Lymphoma Association provides emotional support and information on a range of issues to anyone with lymphatic cancer and to their families, carers and friends.

Adress: The Lymphoma Association , PO Box 386, Aylesbury, Bucks, HP20 2GA.
Phone: 01296 619400