micronavigation ELN path item Leukemias path item MDS path item Study Groups  · 
Workpackage 8

Study Groups of Project 8: Myelodysplastic syndromes (MDS)

Created by: Huber (Project 8) , generated 2006/03/29, last changed: 2008/01/08

MDS trial groups willing to cooperate within framework of LeukemiaNet

  • Budapest MDS group
  • EBMT MDS subcommittee, Prof. de Witte (http://www.ebmt.org/)
  • EORTC, Prof. de Witte (http://www.eortc.be/)
  • German MDS study group, Prof. Aul, Prof. Ganser
  • GFM group (Avicenne) Prof. Fenaux
  • HOVON (Dutch haemato-oncology association) (http://www.hovon.nl/)
  • PETHEMA (Spanish GETH MDS group), Prof. Sanz (http://www.pethema.org/)
  • MDS-Israel Group (MDS-IG)
  • National (UK) Cancer Group, Hem. Malignancies, Prof. Bowen
  • Nordic MDS group, Prof. Hellström (http://www.nordicmds.org/)
  • UK MDS Forum Clinical Trials Group, Prof. Bowen

Possible groups to be added:

Pharmaceutical companies active in MDS and willing to cooperate with LeukemiaNet

Celgene (http://www.celgene.com/)
Pharmion (http://www.pharmion.com/)
Amgen (http://www.amgen.com/)
Roche (http://www.roche.com/)
Novartis (http://www.novartis.com/)
Apotex (http://www.apotex.com/)
Chugai (http://www.chugai-pharm.co.jp/hc/chugai_top_en.jsp;jsessionid=GYS25FHCKM0XCCSSUIHCFEQ)
CTI
Genzyme, ATG (location Sangstet, Lyon) (http://www.genzyme.com/)

Name of the study group

Groupe Francais des Myelodysplasies

Disease(s)

MDS classified according to FAB or WHO classifications

Leader(s) of the study group

Pr Pierre FENAUX
Hopital Avicenne- Service d'Hematologie
125 rue de Stalingrad
93009 Bobigny
France
Tel : 00 33 (0)1 48 95 70 50
Fax : 00 33 (0)1 48 95 70 58/59
E-mail : pierre.fenaux@avc.ap-hop-paris.fr

Website

http://www.gfmgroup.org/

Studies

  • GFM-EPO-ATRA-2004 (Epoetin Beta and all trans retinoic acid)
  • THAL-SMD-200 (Thalidomid)
  • (for shortprotocols, see studies)

Contact persons

Pr Pierre FENAUX
Hopital Avicenne- Service d'Hematologie
125 rue de Stalingrad
93009 Bobigny
France
Tel : 00 33 (0)1 48 95 70 50
Fax : 00 33 (0)1 48 95 70 58/59
E-mail : pierre.fenaux@avc.ap-hop-paris.fr

Pr François DREYFUS
Service d'Hematologie
Hopital Cochin AP-HP
27 rue du Faubourg Saint Jacques
75014 Paris - France
Tel : 00 33 (0)1 58 41 21 20
Fax : 00 33 (0)1 58 41 19 95
E-mail : francois.dreyfus@cch.ap-hop-paris.fr

Sandrine Vaultier
Coordination GFM
Service d'Hematologie
Hopital Cochin AP-HP
27 rue du Faubourg Saint Jacques
75014 Paris - France
Tel : 00 33 (0)1 58 41 20 90
Fax : 00 33 (0)1 58 41 29 46
E-mail : sandrine.vaultier@cch.ap-hop-paris.fr

Diagnostic Labs

 

Name of the study group

The Budapest MDS study group

Disease(s)

MDS

Leader(s) of the study group

Judit Várkonyi, MD, PhD
e-mail: quitvar@axelero.hu
FAX/phone: (361)275-24-20
address: Kútvölgyi út 4.
Budapest, 1125
Hungary

Website

 

Studies

metabl. enzyme plymorphism, HFE gene analysis, iron metabolism, copper metabolism studies in MDS

Contact persons

See above

Diagnostic Labs

Semmelweis University
3rd Department of Internal Medicine central lab.
Heim Pal Hospital central lab
National Haematological Institute : molecular genetic lab.
National Institute of Epidemiology : lab. of enzymology.

Name of the study group

German MDS-Study Group

Disease(s)

MDS

Leader(s) of the study group

Prof. Dr. A. Ganser, Prof. Dr. C. Aul

Website

European LeukemiaNet MDS-Group

Studies

ATG+CSA, 5-Aza-Cytidine, Decitabine, Revlimid, Valproic Acid

Contact persons

Prof. Dr. A. Ganser (Ganser.Arnold@mh-hannover.de)
Prof. Dr. W.-K. Hofmann (W.K.Hofmann@charite.de)
Prof. Dr. M. Lübbert (Luebbert@mm11.ukl.uni-freiburg.de)
Prof. Dr. C. Aul (Aul@krebs-duisburg.de)
PD Dr. U. Germing (Germing@med.uni-duesseldorf.de)

Diagnostic Labs

Germing (Düsseldorf)
Hofmann (Berlin)
Haase (Göttingen)
Ganser (Hannover)

Laboratories

Budapest MDS group labinfo.doc
Semmelweis University, 3rd Department of Internal Medicine, Budapest
Hofmann_Berlin_labinfo.doc
Department of Hematology and Oncology, Charité, University Hospital Benjamin Franklin, Berlin

 

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